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We have been informed the guideline won't be given priority at this time. This is clearly disappointing but we are focusing on the positive steps we can take moving forward. Though we may be disheartened by this news, it serves as a reminder of how important our work is.
We'll continue to advocate for the community and have scheduled meetings with NHS England and the Minister. We won't give up! We're determined to keep pushing for change to support those affected by Huntington's disease.
Cath Stanley - Chief Executive. Huntington's Disease Association said: