Team Leader and Specialist Youth Worker (North of England)
HDYES is a confidential service is for anyone aged 8-25 with Juvenile Huntington's disease or living in a family affected by Huntington's disease (including extended family such as a cousin or grandparent).
Our youth engagement service can help by:
Provide a non-judgemental ear if you just want someone to talk to
Provide one-to-one and/or group support sessions
Help you with talking to school, college, benefits departments or other agencies
Help you find any additional support you need
Introduce you to young carers projects
Huntington's Disease Youth Organisation - HDYO
Juvenile Huntington's disease
If you have or care for someone with Juvenile Huntington’s, remember you can also contact our Specialist Juvenile Huntington's Disease Adviser, Helen Santini. Helen will be happy to help you find what you’re looking for and answer any questions you have.
You can reach her on firstname.lastname@example.org or 01279 507656.
You can now order our booklet for primary school-aged children by emailing email@example.com or by calling 0151 331 5444.
If you know a young person who will benefit from our services you can refer them to us using the form below.
A big thank you to the National Lottery for funding this service. You can read more about this funding here.
A big thank you to the Jingle Jam for providing funding towards this service. Read about how two weeks of live streaming with Jingle Jam raised over £240,000 for children and young people.