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This April the Huntington's Disease Association is being broadcast on BBC for the Lifeline Appeal.
Viewers will meet some of our charity beneficiaries and hear about our work supporting people affected by Huntington’s disease.
The programme will be broadcast on Sunday 28 April at 12.50pm, we hope you will be able to tune into BBC One to support the Lifeline Appeal. The appeal will repeat on BBC Two on Thursday, 12:50. It will be available on BBC iPlayer for three weeks following the appeal, you can visit this page below.
Support our appeal below
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Celebrity host
We are fortunate enough to have the wonderful, Liverpool-born actress, Alison Steadman as our celebrity host for our appeal.
I was honoured to be asked to present the Lifeline appeal for the Huntington’s Disease Association, the disease is devastating and I urge people to tune in to watch the appeal and hear how the charity has helped families and do what you can to support the charity.
Meet the stars of our BBC Lifeline appeal
Charlotte
Charlotte is a passionate Huntington's Disease Association ambassador, a carer for her mum who is in the middle stages of the condition and Charlotte cared for her nan who sadly passed away from Huntington's disease in 2021. Charlotte recently found out that she is also gene-positive.
The biggest thing for mum is knowing me and Hannah aren’t alone anymore and we don’t have to go through things alone. The community has saved my life, helping me navigate this horrific condition, there’s no other way to put it. We’re here to reassure you, that same community is here for you too.
Chris
Chris is a proud advocate of the Huntington’s Disease Association and he has been supported by the charity for many years. He was also encouraged to attend wellness groups when his adviser noticed he was becoming isolated, these have had a really positive impact on his life. Chris has a great relationship with his local Specialist Huntington’s Disease Adviser and also regularly attends local support groups.
I know that Helen [Huntington’s Disease Association] always acted with my best interest at heart and her advocacy gave me a voice. I owe her a debt of thanks that I don’t think I’ll be able to repay.
Natalie
Natalie and Heather are mother and daughter. Huntington’s disease was passed down through Heather’s mother's side. As Heather's symptoms progressed, she was moved to Dearnevale, a care home that is recommended by the Huntington’s Disease Association. Dearnvale has the charity’s Quality Assured accreditation and they have invested significant time, resources, training and commitment to offer specialist care for people with Huntington’s disease.
Mum is much happier there [Dearnvale] and feels like it is a second family for her. The staffing levels are quite high which compared to the other care homes, makes a big difference. If it hadn’t been for Diana [Specialist Adviser], I wouldn’t of had a clue what to do.
What support do we offer
We support children and young people from Huntington's families
We support anyone affected by Huntington's including carers, reletives and employers
We support professionals who work with people affected by Huntington's
About BBC Lifeline
Lifeline has helped raise money for hundreds of charities across the UK. The first Lifeline appeal was back in 1986. To find out more and support our appeal, visit our appeal page on the link below.
Behind the scenes
