For Huntington's disease awareness month, we aimed to highlight the impact that Huntington’s disease has on mental health with the campaign, #HuntingtonsInMind.

The campaign raised awareness about the mental health impact that a diagnosis of Huntington’s disease has on individuals and their families. We asked people from the Huntington’s community if they would like to share their stories, thank you to everyone who contributed.

What did we do

  • Created three powerful videos from members of the community
  • Had a large-scale social media campaign
  • Built a dedicated landing page offering mental health support and signposting
  • Created a range of blogs from members of the community
  • Held dedicated webinars on the subject of mental health
  • Outreach to national press and publications
  • Conferences and podcasts aimed at healthcare professionals
  • Television slots with the charity's celebrity ambassador
  • Launched an Early Day Motion (EDM) about the lack of mental health support
  • Debate in Westminster Hall 
  • Multiple questions tabled in parliament
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Stories from the community

We reached out to the Huntington's community to create three powerful films, each person and family have their own story to tell about how Huntington's has impacted their lives and their mental health. 


Alison bravely shared her story about life caring for her husband, Bert and daughter Elise.

David who is gene-positive and his wife, Debbie spoke about navigating David's mental symptoms.

Charlie talked about the impact of Huntington's in her family and the feelings around testing negative.

Support from our patron

The month was launched by our patron, actor George Rainsford who spoke about the campaign on the ITV programme Loose Women and on BBC Morning Live. George Rainsford is a passionate supporter who featured in a storyline on the TV programme Casualty about Huntington’s disease. Throughout the month, George spoke about Huntington's disease awareness and mental health. 


George Raisford on BBC Morning Live

George 1

George Rainsford on ITV's Loose Women

#HuntingtonsInMind progress timeline

You can follow our timeline of events from the lead-up to awareness month to what we are doing now. The campaign was the start of an ongoing project to campaign for better mental health services for people living with and affected by Huntington's disease.


What we achieved

Huntington's in mind campaign


We have shared a number of resources that have been designed to help you. Please take a look around the resource section to see what there is. You can also call one of our Specialist Huntington's Disease Advisers, they are available Monday to Friday 9am - 5pm.