Research studies come in many forms. Some may require you to speak to them about your experience, others may require meetings with medical professionals or taking part in focus groups.
You can find out more about current and past studies in this section of the website. If you want to be notified when we have new studies to take part in, you can sign up to our mailing list at the bottom of this page.
Below is a short video from HDYO about taking part in research.
Get involved in research studies
Enroll-HD
Enroll-HD is an international study that is recruiting all year round.
The aim of the study is to accelerate the development of therapies for Huntington's by collecting more uniform clinical data and biological samples to better understand the natural history of Huntington's disease.
Currently recruiting research studies
Quality of life study
Get involved in research studies - 2024
Digital engagement - Research study
HD DRUM - research opportunity
Attitudes towards Huntington's disease genetic testing
Social cognition in Huntington's disease
Be part of research
If you want to see what clinical trials are available if you wish to take part in clinical trials, you can finds out what trials are taking place and where they are recruiting on the National Institute of Health website.
HD Voice
HD Voice is a panel of volunteers who help researchers learn about the needs of families living with Huntington’s. They work on different projects to help researchers plan and develop their ideas. If you wish to be a part of HD Voice, please read the information below.
Past research studies
The psychosocial implications of receiving a grey area genetic test result
Integrate-HD II research study
Wellbeing focus group
Integrate-HD study
Research opportunity - to create a trial a music therapy programme
