Research studies come in many forms. Some may require you to speak to them about your experience, others may require meetings with medical professionals or taking part in focus groups. 

You can find out more about current and past studies in this section of the website. If you want to be notified when we have new studies to take part in, you can sign up to our mailing list at the bottom of this page.

If you have a study that you are looking to recruit for, please fill out the form below. Please note that all studies require ethical approval in order for us to share. 

Submit your study request

HD Voice

HD Voice is a panel of volunteers who help researchers learn about the needs of families living with Huntington’s. They work on different projects to help researchers plan and develop their ideas. If you wish to use HD Voice to support your project, please read the information sheet below.

Download information sheet

Current research studies

iPad | Huntington's disease

Digital engagement - Research study

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HD DRUM - research opportunity

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Genetic study | Huntington's disease

Attitudes towards Huntington's disease genetic testing

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Guided self-help for anxiety for people with Huntington's disease

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Alex Fisher Winners speech 2

Social cognition in Huntington's disease

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Get involved in research studies

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Past research studies


Wellbeing focus group

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Profile pic Jan2022

Integrate-HD study

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News Articles  Website Banners  2022 (40)

Research opportunity - to create a trial a music therapy programme

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