Research studies come in many forms. Some may require you to speak to them about your experience, others may require meetings with medical professionals or taking part in focus groups. 


You can find out more about current and past studies in this section of the website. If you want to be notified when we have new studies to take part in, you can sign up to our mailing list at the bottom of this page.

If you have a study that you would like us to help recruit participants for please visit recruiting for a study

Below is a short video from HDYO about taking part in research.

Get involved in research studies

Enroll-HD

Enroll-HD is an international study that is recruiting all year round. 

The aim of the study is to accelerate the development of therapies for Huntington's by collecting more uniform clinical data and biological samples to better understand the natural history of Huntington's disease.

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Currently recruiting research studies

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Get involved in research studies - June 2024

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Integrate-HD II research study

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iPad | Huntington's disease

Digital engagement - Research study

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HD DRUM - research opportunity

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Genetic study | Huntington's disease

Attitudes towards Huntington's disease genetic testing

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Alex Fisher Winners speech 2

Social cognition in Huntington's disease

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Be part of research

If you want to see what clinical trials are available if you wish to take part in clinical trials, you can finds out what trials are taking place and where they are recruiting on the National Institute of Health website.

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HD Voice

HD Voice is a panel of volunteers who help researchers learn about the needs of families living with Huntington’s. They work on different projects to help researchers plan and develop their ideas. If you wish to be a part of HD Voice, please read the information below.

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Past research studies

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Wellbeing focus group

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Integrate-HD study

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Research opportunity - to create a trial a music therapy programme

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Huntington's disease care

Guided self-help for anxiety for people with Huntington's disease

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Want to hear about current studies?