A strong charity to better champion the needs of our community.

New roles

As the charity reported an increase in income in the previous year, we were able to recruit to new roles to increase the effectiveness of the service we offer.


Helpline Adviser - this is a responsive role. The Adviser Kim, is often the first point of contact for people who ring the helpline. Kim is listening, ear, emotional support, general advice/guidance and signposting/links to relevant wider services.


Policy and Public Affairs Manager - this important role has allowed us to have a voice in parliament to help fulfil our vision of ‘A better life for anyone affected by Huntington’s disease’ Having a dedicated person to fulfil this role has meant our influence as a charity has a greater reach. 


New youth team worker - due to the hereditary nature of Huntington's disease and its impact on children and young people we were delighted to be able to recruit a new youth worker further enabling the reach of the work we do. Jack has quickly established himself working with young people and has allowed the youth service to start its ambitious growth plan.


The operations team continues to support the charity to enable it to operate effectively.  Their work includes HR, systems management, supporting staff, safeguarding policy and procedure management.

Next - Goal six