Support in London

We are here to support you whether you are looking for peer support or advice from a professional. Below you can find out more about our Specialist Huntington's Disease Advisers and local branch and support groups.

Specialist Huntington's Disease Advisers

Our specialist advisers are experienced and compassionate care management professionals. 

They support anyone who needs their help at any stage of the Huntington’s journey. They can help people living with the disease, people at risk of inheriting the disease, family members and carers, and children or young people. They can even advise friends, neighbours, employers and your medical team.

Our Specialist Huntington’s Disease Advisers can help by:

  • providing a listening ear, advice and emotional support
  • delivering our confidential telephone helpline service
  • coordinating support with medical, health and social care professionals
  • making referrals into specialist Huntington’s disease clinics
  • advocating for the person with Huntington’s disease to get the best support
  • organising and attending local support networks and carers’ group meetings
  • providing information resources on symptoms and how to manage them
  • connecting younger family members with our Youth Engagement Service - HDYES
  • giving support for sensitive end-of-life care
  • educating medical, health and social care professionals
Tracey - Huntington's Disease Association

Tracey Hole

Bexley, Bromley, Dartford

0144 4223068

Huntington's Disease Association

Sirumpa Waranon

Youth Worker (Greater London)

01992 661953

Branch and support groups

You can click on each branch and support group to find out more about the groups and where they meet. If you can't see one in your area and you are thinking about setting one up, please email and we can support you in doing this.

London branch

The Huntington's Disease Association London branch support group is run by volunteers to provide emotional and practical support to anyone affected by Huntington's disease in the local area.


We hold informal meetings on a regular basis, usually over tea or coffee, to offer support and advice to people affected by Huntington’s disease. Our venues are spread across London, north of the River Thames, but anyone from across London is welcome to attend.


Prior to the Covid pandemic, we have run family days with guest speakers including Huntington's disease researchers and dieticians; we have had a representative from the Department for Work and Pensions, which our members found extremely useful.


Our social events include picnics and a garden party.


The London branch meets at different venues with the main meetings being held in the Highbury area. Currently meetings are also being held in Uxbridge and 'Pop Up' meetings in East London. 




Branch meetings

Meetings are held in the following places:

  • Highbury 
  • Uxbridge
  • East London


Where we meet

  • Highbury - Meetings held at Arsenal FC Community Hub or a local cafe
  • Uxbridge - Hillingdon Carers Office, Uxbridge High Street
  • East London - Multiple locations

Please make contact with for further details.



Key contact

Chair: Graham Goode

01895 674261, 07538 739203 

Treasurer: Sharon Gorrie

07739 175422



Specialist Huntington's Disease Adviser

Anna Holmes

01923 679 040