We’re here to support people with Huntington’s disease, their friends and family and also the professionals who work with them. 

We do this through our Specialist Huntington’s Disease Advisory Service. Our Specialist Huntington’s Disease Advisers can:

  • offer information and advice on Huntington’s disease, and suggest relevant literature for further reading.
  • identify suitable respite breaks, residential care facilities and other services such as specialist clinics and day centres.
  • provide training sessions for service providers such as social services, nursing homes, and residential care staff teams.
  • work with families to provide advice, information and practical and emotional support.