HD Youth Voice gives young members from the community the opportunity to be involved in shaping the future of how we support young people.

We want young people to have an opportunity to help us develop the services, programmes and resources that we create so that we can provide the best possible support for young people impacted by Huntington's disease.


The programme started in January 2023 with a residential meeting of ten young people accompanied by our Youth Coordinator, James and Youth Worker, Jack.


Huntington's disease