New to Huntington's disease?

Have you recently found out about Huntington's disease in your family?

You might be feeling a lot of emotions. You might not be sure what to do next.

We understand - you're not alone.

Take a look at our information for people who are new to Huntington's disease to find out how we can help.

Learn more

Help and support

What is Huntington's?

You’ll find information about Huntington’s disease, what causes it and its symptoms here.

Getting help

Find information to help you get the support you need in this section.

Find support near you

Our Specialist Huntington’s Disease Advisers can help and support you. Click here to find your local adviser.

Support for young people

Find advice and support for children and young people in this section.

Support our work

£5 per month

£5 could help support our youth service provision.

£10 per month

£10 could pay for information guides for people living with Huntington's disease.

£25 per month

£25 could pay for 15 calls to our confidential telephone helpline service.

One time donation

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Your donation will help us support people living with Huntington’s disease.

Latest News

Major breakthrough in Huntington’s disease drug trial

Huntington’s disease researcher wins international award

BBC Children in Need awards grant to expand specialist youth service

Little Print Shop of Horrors reopens in aid of Huntington’s Disease Association