Huntington's Disease Association - Home

Help and support

Care

What is Huntington's disease?

Huntington’s disease is an illness caused by a faulty gene in your DNA (the biological ‘instructions’ you inherit which tell your cells what to do).

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Find support near you

Our team of Specialist Huntington's Disease Advisers are here to help you - they can provide information, advice and support on all aspects of Huntington's disease.

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Getting help

We are here to offer support and advice no matter what stage of Huntington's disease journey you are on. We support entire families, carers, healthcare professionals, employers and teachers.

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Support for young people

If you are a child or young person that has someone with Huntington’s disease in your family, this section is for you.

Latest news

Communique awards

Communiqué Awards 2025

Department of work and pensions letter

Handing our letter to Department for Work and Pensions

Community driven research

Shaped by you: Community driven research into Huntington's

Upcoming events

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Finding your way with Huntington's disease

8 July 2025, 2:00pm - 3:00pm

12 August 2025, 2:00pm - 3:00pm

9 September 2025, 2:00pm - 3:00pm

For families and For professionals and Support and Youth engagement service and Monthly events

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Young adults peer support group

10 July 2025, 7:00pm - 8:00pm

8 September 2025, 7:00pm - 8:00pm

11 November 2025, 7:00pm - 8:00pm

Support and Youth engagement service

Four people looking for clues in an escape room

HDYES Ninja Warrior event - Stoke

30 July 2025, 10:15am - 2:00pm

In person and Youth engagement service

View all events

Support our work

Make a donation

Your donation will help us support people living with Huntington’s disease.

£27.85 helps support our vital telephone helpline

£11.98 could pay for five booklets to help children to learn about Huntington's disease

£67.69 allows us to provide care and support groups for families with Huntington's disease

For professionals

Training

Training

Did you know that the Huntington's Disease Association offers a range of training for professionals?

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Webinars and videos

Book on to one of our live webinars or watch any of our recorded sessions.

Professional resources

Useful leaflets and guides to help professionals understand Huntington's disease.

Patient journey

Understand the patient journey and at what interventions are needed at different stages of the disease.

Events for you

Wing Walk

Wing Walk 2025

Challenges and For young people

Lucy and Jack - Running - Consent 2023 (3)

Run for charity - event directory

Running events

Kelly Gordon - Walking - Consent 2022

Climb Snowdon challenge

Challenges

View more events