New to Huntington's disease?

Have you recently found out about Huntington's disease in your family?

You might be feeling a lot of emotions. You might not be sure what to do next.

We understand - you're not alone.

Take a look at our information for people who are new to Huntington's disease to find out how we can help.

Learn more

Help and support

What is Huntington's?

You’ll find information about Huntington’s disease, what causes it and its symptoms here.

Getting help

Find information to help you get the support you need in this section.

Find support near you

Our Specialist Huntington’s Disease Advisers can help and support you. Click here to find your local adviser.

Support for young people

Find advice and support for children and young people in this section.

Latest news

Sad news of the death of Patron Dowager Countess of Harewood

Video postcard from latest research conference

Update from the CHDI conference 27 February – 1 March 2018

Call the Midwife tackles Huntington’s disease storyline

Support our work

£15 helps support our vital telephone helpline

£50 allows us to provide care and support groups for families with Huntington's

£150 pays for more than 8 hours of specialist Huntington's support for families

Make a donation


Your donation will help us support people living with Huntington’s disease

Donate Now