Huntington's Disease Awareness Month

Behind the gene - the invisible challenges and untold stories of Huntington's disease.

This May, we are showing the many faces and many lives behind Huntington's disease. We're letting our community highlight what they wish people and professionals knew about the disease.

 

Get involved

When Bob Dylan met Woody Guthrie: The Guthrie Family Story

Guthrie’s granddaughter Anna Canoni delves into the personal and professional relationship between Woody Guthrie and Bob Dylan, exploring the deeper creative impact Woody had on Bob Dylan's writing in his early days. She will also share her family life and Woody’s illness with Huntington’s disease.

 

Register here

Support for professionals

Are you a professional working or supporting someone with Huntington's disease? We educate health and social care professionals through training, information resources, webinars and events.

 

Find out more

New to Huntington's disease

Have you recently found out about Huntington's disease? We are here to offer advice and support for anyone affected by Huntington's disease. We educate healthcare professionals in order to help them better support those with Huntington's.

 

Find out what we do

BBC Lifeline Appeal

Did you miss our BBC Lifeline appeal? The appeal video is now live on our website. Meet some members of the Huntington's disease community as they talk about their journey and how the Huntington's Disease Association has supported them.

 

Watch the appeal

#MindfulOfHuntingtons

How we are raising awareness of the impact that cognitive impairment has on the quality of life of those with Huntington’s disease, family members and carers.

 

Find out more 

Information and support

We have a wide range of resources and information to help you navigate your Huntington's journey. You can find these all on our website or request copies in the post by emailing us or giving us a call.

 

View our resources