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Help and support

Care

What is Huntington's disease?

Huntington’s disease is an illness caused by a faulty gene in your DNA (the biological ‘instructions’ you inherit which tell your cells what to do).

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Find support near you

Our team of Specialist Huntington's Disease Advisers are here to help you - they can provide information, advice and support on all aspects of Huntington's disease.

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Getting help

We are here to offer support and advice no matter what stage of Huntington's disease journey you are on. We support entire families, carers, healthcare professionals, employers and teachers.

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Support for young people

If you are a child or young person that has someone with Huntington’s disease in your family, this section is for you.

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Latest news

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A qualitative investigation into clinician perspectives of working with anticipatory grief in Huntington’s disease

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Huntington's disease care

Educating continuing health care assessors

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New guide for healthcare professionals about NHS Continuing Healthcare (CHC) Assessments

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Upcoming events

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Parents of adult children at risk

10 April 2026 - 8 May 2026, 10:00am - 11:30am

Support and For families and Youth engagement service

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Speech and language therapy for people who have Huntington's

Speech and language therapy for people who have Huntington's disease

12 May 2026, 1:00pm - 2:00pm

For professionals and Lunchtime event

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Finding your way - Becky

Finding your way: Awareness Month special

13 May 2026, 7:00pm - 8:00pm

For families and Support

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Support our work

Make a donation

Your donation will help us support people living with Huntington’s disease.

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£27.85 helps support our vital telephone helpline

£11.98 could pay for five booklets to help children to learn about Huntington's disease

£67.69 allows us to provide care and support groups for families with Huntington's disease

For professionals

Training

Training

Did you know that the Huntington's Disease Association offers a range of training for professionals?

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Webinars and videos

Book on to one of our live webinars or watch any of our recorded sessions.

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Professional resources

Useful leaflets and guides to help professionals understand Huntington's disease.

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Patient journey

Understand the patient journey and at what interventions are needed at different stages of the disease.

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Events for you

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Ultra Events, White Collar Boxing

Challenges

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Run for charity - event directory

Running events

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Kelly Gordon - Walking - Consent 2022

Climb Snowdon challenge

Challenges

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