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Help and support


What is Huntington's disease?

Huntington’s disease is an illness caused by a faulty gene in your DNA (the biological ‘instructions’ you inherit which tell your cells what to do).

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Find support near you

Our team of Specialist Huntington's Disease Advisers are here to help you - they can provide information, advice and support on all aspects of Huntington's disease.

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Getting help

We are here to offer support and advice no matter what stage of Huntington's disease journey you are on. We support entire families, carers, healthcare professionals, employers and teachers.

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Support for young people

If you are a child or young person that has someone with Huntington’s disease in your family, this section is for you.

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Latest news

TedXBath talk

The Unlimited Capability of Every Human | Charles Sabine | TEDxBath

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Update on Pridopidine

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Get involved in research studies - January 2024

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Support our work

Make a donation

Your donation will help us support people living with Huntington’s disease.

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£27.85 helps support our vital telephone helpline

£11.98 could pay for five booklets to help children to learn about Huntington's disease

£67.69 allows us to provide care and support groups for families with Huntington's disease

For professionals



Did you know that the Huntington's Disease Association offers a range of training for professionals?

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Webinars and videos

Book on to one of our live webinars or watch any of our recorded sessions.

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Professional resources

Useful leaflets and guides to help professionals understand Huntington's disease.

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Patient journey

Understand the patient journey and at what interventions are needed at different stages of the disease.

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Events for you

Huntington's disease event

HDYES craft event - Staffordshire

3 March 2024, 1:30pm - 3:30pm

HDYES and Support

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Huntington's disease event

Understanding the gastrostomy tube (PEG feeding)

6 March 2024, 2:00pm - 3:00pm


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Young adults wellbeing event

19 March 2024, 7:00pm - 8:30pm


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