Diana King
South Yorkshire
Support in Yorkshire and the Humber
We are here to support you whether you are looking for peer support or advice from a professional. Below you can find out more about our Specialist Huntington's Disease Advisers and local branch and support groups.
Specialist Huntington's Disease Advisers
Our specialist advisers are experienced and compassionate care management professionals.
They support anyone who needs their help at any stage of the Huntington’s journey. They can help people living with the disease, people at risk of inheriting the disease, family members and carers, and children or young people. They can even advise friends, neighbours, employers and your medical team.
Our Specialist Huntington’s Disease Advisers can help by:
- providing a listening ear, advice and emotional support
- delivering our confidential telephone helpline service
- communicating with medical, health and social care professionals
- working with specialist Huntington’s disease clinics
- advocating for the person with Huntington’s disease to get the best support
- organising and attending local support networks and carers’ group meetings
- providing information resources on symptoms and how to manage them
- connecting younger family members with our Youth Engagement Service - HDYES
- giving support for sensitive end-of-life care
- educating medical, health and social care professionals
Branch and support groups
You can click on each branch and support group to find out more about the groups and where they meet. If you can't see one in your area and you are thinking about setting one up, please email branch@hda.org.uk and we can support you in doing this.
Hull and East Riding branch
Welcome to the Hull and East Riding branch of the Huntington's Disease Association. We meet regularly and welcome anyone affected in any way by Huntington's disease to our meetings. We also invite the local Specialist Huntington's Disease Advisor to some of our meetings.
Types of support we offer
- Support group that meets regularly for anyone affected by Huntington’s disease and put on a variety of activities
- A WhatsApp peer support group chat
- We invite health and social care professionals to our meetings to give talks about various topics around Huntington's disease and other related issues, e.g. how to access benefits
- We hold a separate, regular carers’ meal at a local pub where carers can share concerns and experiences in a more informal setting
- We have run several fundraising activities throughout the year, such as a pub quiz, a dinner dance, sky dive and the Hull 10k
Where we meet
Various locations across Hull and East Riding, please contact for further information. In addition, regular Zoom calls are held online.
When we meet
We meet at various dates and times. Contact for further information.
Key contact
Specialist Huntington's Disease Adviser
Justine Duffy
07841775373
Keighley support group
We are a new support group and would love for you to join us for a coffee and a chat.
The Salvation Army Cafe is very reasonably priced with no obligation to purchase. The car park is very small so if possible, please park in Church Green carpark or on street.
Where we meet
Salvation Army Keighley High street,
Keighley,
BD21 2JL
When we meet
11:00am on the first Tuesday of every month (excluding January)
Key contact
Rebecca Sutcliff
Specialist Huntington's Disease Adviser
Justine Duffy
01282 501873
North Yorkshire support group
The Huntington's Disease Association North Yorkshire support group is run by volunteers to provide emotional and practical support to anyone affected by Huntington's disease in the local area. We meet for coffee, tea, cake and great company.
Where we meet
St Clements Church in York
15A Scarcroft Road
York, YO23 1NE
When we meet
Meetings are held on the third Monday of the month at 10:30am until summer 2024 with a scheduled summer break in July and August 2024.
Key contact
Justine Duffy
01282 501873
Specialist Huntington's Disease Adviser
Justine Duffy
01282 501873
West Yorkshire branch
The Huntington's Disease Association West Yorkshire branch is run by volunteers to provide emotional and practical support to anyone affected by Huntington's disease in the local area.
When we meet
We meet up face to face at various locations across the county.
Key contact
Secretary: Nicky Smith
Specialist Huntington's Disease Adviser
Justine Duffy
07841775373
Useful services
York and Scarborough
Neurosciences Department
Multi-Disciplinary Team of doctors, specialist nurses, social workers, occupational therapists, physiotherapists, dieticians, speech therapists, psychologists and nursing staff who provide care and treatment for people living with a range of neurological conditions.
Kirklees
Community Rehabilitation Service
A multidisciplinary team which provides treatment, rehabilitation, advice and support to people living in Kirklees. The purpose of the team is to help you achieve your goals in relation to daily living and quality of life.
Doncaster and Rotherham
Neuro Rehabilitation Outreach Team
The Neuro Rehabilitation Outreach Team provides an integrated rehabilitation service for adults in Doncaster and Rotherham: Inpatient assessment, Neurorehabilitation Inpatient Unit, Community services, Outpatient consultation and rehabilitation.
Leeds
Community Neurological Rehabilitation Team
The Community Neurological Rehabilitation Team are a specialist rehabilitation service providing therapy to adults who live with a neurological diagnosis and have a Leeds GP. They are a multidisciplinary team made up of: a Consultant in Rehabilitation Medicine, Dietitians, Nurses, Occupational Therapists, Physiotherapists, Psychologists and Therapy Assistants.
Wakefield
MY Therapy
MY Therapy see patients within the Wakefield district who require assessment, treatment and rehabilitation services. The team is made up of Physiotherapists (PT), Dieticians, Occupational Therapists (OT) and Support Staff.
MY Therapy see patients within the Wakefield district who require assessment, treatment and rehabilitation services.
Bradford
Neurological Rehabilitation Team
The team consists of Occupational Therapists (OT), Physiotherapists (PT) and Therapy Assistants (TA). They work across the outpatient and community setting to provide a co-ordinated approach to patient care.
Barnsley
Community Matrons
Community matrons provide case management for individuals within community settings who have complex long-term conditions requiring support from both health and social care services.
Hull and East Riding
Huntington's Disease Team
Offer assessment for and treatment of Huntington's disease, offering a holistic multi-disciplinary assessment and continuous long-term care.
Harrogate and District
Stroke, neurology and amputee rehabilitation
Provide rehabilitation support in a range of settings according to need.
Sheffield
Neurological Enablement Service (NES)
Specialist community-based team who provide support to people living with a long-term neurological condition.
Neuro Case Management Service
Specialist community team that sits within the Long Term Conditions Service. They work with people who are living with the challenges of a long-term neurological condition, their families and carers.
Neighbourhood Rehabilitation Service (home based occupational therapy)
Community occupational therapy service - Helps people with complex physical disabilities and neurological impairments maximise their independence within the community.
