We are here to support you whether you are looking for peer support or advice from a professional. Below you can find out more about our Specialist Huntington's Disease Advisers and local branch and support groups.
Our specialist advisers are experienced and compassionate care management professionals.
They support anyone who needs their help at any stage of the Huntington’s journey. They can help people living with the disease, people at risk of inheriting the disease, family members and carers, and children or young people. They can even advise friends, neighbours, employers and your medical team.
Our Specialist Huntington’s Disease Advisers can help by:
You can click on each branch and support group to find out more about the groups and where they meet. If you can't see one in your area and you are thinking about setting one up, please email firstname.lastname@example.org and we can support you in doing this.
Hull and East Riding branch
Welcome to the Hull and East Riding Branch of the Huntington's Disease Association. We meet regularly and welcome anyone affected in any way by Huntington's disease to our meetings. We also invite the local Specialist Huntington's Disease Advisor to some of our meetings.
Various locations across Hull and East Riding, please contact for further information. In addition regular zoom calls are held online.
We meet at various dates and times. Contact for further information.
Keighley support group
We are a new support group and would love for you to join us for a coffee and a chat.
The Salvation Army Cafe is very reasonably priced with no obligation to purchase. The car park is very small so if possible, please park in Church Green carpark or on street.
Salvation Army Keighley High street,
11:00am on the first Tuesday of every month (excluding January)
North Yorkshire support group
The Huntington's Disease Association North Yorkshire support group is run by volunteers to provide emotional and practical support to anyone affected by Huntington's disease in the local area. We meet for coffee, tea, cake and great company.
St Clements Church in York
15A Scarcroft Road
York, YO23 1NE
Meetings are held on the third Monday of the month at 10:30am until summer 2024 with a scheduled summer break in July and August 2024.
West Yorkshire branch
The Huntington's Disease Association West Yorkshire branch is run by volunteers to provide emotional and practical support to anyone affected by Huntington's disease in the local area.
We meet up face to face at various locations across the county.
Secretary: Nicky Smith