Ivy Broadhead
Northumberland, Tyne and Wear, County Durham, Teeside. Currently on maternity leave, call the helpline for support in this area
Support in the North East of England
We are here to support you whether you are looking for peer support or advice from a professional. Below you can find out more about our Specialist Huntington's Disease Advisers and local branch and support groups.
Specialist Huntington's Disease Advisers
Our specialist advisers are experienced and compassionate care management professionals.
They support anyone who needs their help at any stage of the Huntington’s journey. They can help people living with the disease, people at risk of inheriting the disease, family members and carers, and children or young people. They can even advise friends, neighbours, employers and your medical team.
Our Specialist Huntington’s Disease Advisers can help by:
- providing a listening ear, advice and emotional support
- delivering our confidential telephone helpline service
- communicating with medical, health and social care professionals
- working with specialist Huntington’s disease clinics
- advocating for the person with Huntington’s disease to get the best support
- organising and attending local support networks and carers’ group meetings
- providing information resources on symptoms and how to manage them
- connecting younger family members with our Youth Engagement Service - HDYES
- giving support for sensitive end-of-life care
- educating medical, health and social care professionals
Branch and support groups
You can click on each branch and support group to find out more about the groups and where they meet. If you can't see one in your area and you are thinking about setting one up, please email branch@hda.org.uk and we can support you in doing this.
County Durham support group
Open to anyone in a family affected by Huntington's disease - whether you have Huntington's, are at risk or are a carer or another family member. The meetings are very informal and a chance to chat and share advice and experience with other people living in families affected by Huntington's disease.
When we meet
10:30am -12:30pm
-
Wednesday 14 May
Where we meet
The Community Room
Pelton Library
Pelton
County Durham
DH2 1HS
Key contact
Ivy Broadhead
Specialist Huntington's Disease Adviser
ivy.broadhead@hda.org.uk / info@hda.org.uk
01914 064974 / 0151 3315444
Specialist Huntington's Disease Adviser
Ivy Broadhead
01914 064974
North East online support group
Open to anyone in a family affected by Huntington's disease - whether you have Huntington's, are at risk or are a carer or another family member. The meetings are very informal and a chance to chat and share advice and experience with other people living in families affected by Huntington's disease.
New members are always very welcome, please contact Ivy or Head Office for joining details.
Where we meet
Online every other month at 7.00pm (usually the last Wednesday of that month)
Key contact
Ivy Broadhead
Specialist Huntington's Disease Adviser
ivy.broadhead@hda.org.uk / info@hda.org.uk
01914 064974 / 0151 3315444
Specialist Huntington's Disease Adviser
Ivy Broadhead
01914 064974
Northumberland Tyne and Wear support group
Our group welcomes people living with, or those affected by, Huntington's disease to meet others in a similar position. People will be able to access support, advice and guidance in an informal setting. We will also look to invite internal speakers and we welcome any ideas/feedback from those attending.
When we meet
We meet every other month on a Sunday between 1.30 – 3.30pm, please find below our upcoming meeting dates:
-
Sunday 25 May
-
Sunday 20 July
-
Sunday 21 September
-
Sunday 23 November
Where we meet
The Wellbeing Centre
Marie Curie Hospice
Marie Curie Drive
Newcastle
NE4 6SS
Key contact
David Whalley, Support group leader
northumberlandtynewearhdagroup@gmail.com
Specialist Huntington's Disease Adviser
Ivy Broadhead
01914 064974
Useful services
Community neuropsychiatry team
(plus access to specialist clinic, genetics service and inpatient beds)
The Neuropsychiatry Outpatient Team is a specialist, planned care service which offers assessment, signposting and short-term interventions to people with a neuropsychiatric condition which may arise as a result of Huntington’s disease or other conditions.
16-bed neuro-psychiatry unit for assessment and treatment of neuro-psychiatric consequences of brain injury acquired in adult life and regional service for the assessment, diagnosis and management of Huntington’s disease.
Northern Genetics Service
The Northern Genetics Service provides assessment and counselling for families with genetic disorders in the northern region.
