Support in the North East of England

We are here to support you whether you are looking for peer support or advice from a professional. Below you can find out more about our Specialist Huntington's Disease Advisers and local branch and support groups.

Specialist Huntington's Disease Advisers

Our specialist advisers are experienced and compassionate care management professionals. 

They support anyone who needs their help at any stage of the Huntington’s journey. They can help people living with the disease, people at risk of inheriting the disease, family members and carers, and children or young people. They can even advise friends, neighbours, employers and your medical team.

Our Specialist Huntington’s Disease Advisers can help by:

  • providing a listening ear, advice and emotional support
  • delivering our confidential telephone helpline service
  • coordinating support with medical, health and social care professionals
  • making referrals into specialist Huntington’s disease clinics
  • advocating for the person with Huntington’s disease to get the best support
  • organising and attending local support networks and carers’ group meetings
  • providing information resources on symptoms and how to manage them
  • connecting younger family members with our Youth Engagement Service - HDYES
  • giving support for sensitive end-of-life care
  • educating medical, health and social care professionals
John - Huntington's Disease Association

John Gregor

Northumberland, Tyne and Wear, County Durham, Teeside

0191 3388123

James - Huntington's Disease Association

James O'Connor

Specialist Youth Worker

0142 2411466


Branch and support groups

You can click on each branch and support group to find out more about the groups and where they meet. If you can't see one in your area and you are thinking about setting one up, please email and we can support you in doing this.

North East support group

Open to anyone in a family affected by Huntington's disease - whether you have Huntington's, are at risk or are a carer or another family member. Our meetings are very informal and are a chance to share advice, support and understanding.
Please contact John Gregor for more details and meeting dates.



Where we meet

We meet both online via Zoom and in person.



When we meet online

We meet in the evening at 7pm - this is usually every other month on the last Wednesday. Please contact John Gregor for joining details.



Next in person meetings

Come and join other people affected by Huntington's disease for advice, support and a good chat.

  • 09 July
  • 17 September
  • 12 November



Conference Room 2

Walkergate Park Hospital

Benfield Road

Newcastle upon Tyne



Download the poster



Key contact

John Gregor

Specialist Huntington's Disease Adviser




Specialist Huntington's Disease Adviser

John Gregor