Ivy Broadhead
Northumberland, Tyne and Wear, County Durham, Teeside
Support in the North East of England
We are here to support you whether you are looking for peer support or advice from a professional. Below you can find out more about our Specialist Huntington's Disease Advisers and local branch and support groups.
Specialist Huntington's Disease Advisers
Our specialist advisers are experienced and compassionate care management professionals.
They support anyone who needs their help at any stage of the Huntington’s journey. They can help people living with the disease, people at risk of inheriting the disease, family members and carers, and children or young people. They can even advise friends, neighbours, employers and your medical team.
Our Specialist Huntington’s Disease Advisers can help by:
- providing a listening ear, advice and emotional support
- delivering our confidential telephone helpline service
- coordinating support with medical, health and social care professionals
- making referrals into specialist Huntington’s disease clinics
- advocating for the person with Huntington’s disease to get the best support
- organising and attending local support networks and carers’ group meetings
- providing information resources on symptoms and how to manage them
- connecting younger family members with our Youth Engagement Service - HDYES
- giving support for sensitive end-of-life care
- educating medical, health and social care professionals
Branch and support groups
You can click on each branch and support group to find out more about the groups and where they meet. If you can't see one in your area and you are thinking about setting one up, please email branch@hda.org.uk and we can support you in doing this.
North East online support group
Open to anyone in a family affected by Huntington's disease - whether you have Huntington's, are at risk or are a carer or another family member. The meetings are very informal and a chance to chat and share advice and experience with other people living in families affected by Huntington's disease.
New members are always very welcome, please contact Ivy or Head Office for joining details.
Where we meet
Online every other month at 7.00pm (usually the last Wednesday of that month)
Key contact
Ivy Broadhead
Specialist Huntington's Disease Adviser
ivy.broadhead@hda.org.uk / info@hda.org.uk
01914 064974 / 0151 3315444
Specialist Huntington's Disease Adviser
Ivy Broadhead
01914 064974
Northumberland Tyne and Wear support group
The group allows those living with, or those affected by, Huntington's disease to meet others in a similar position. People will be able to access support, advice and guidance in an informal setting. We will also look to invite internal speakers in and also welcome any ideas/feedback from those attending. All welcome.
When we meet
Meet every other month on a Sunday at Walkergate Park Hospital.
Meetings are held 1.30-3.30pm.
Where we meet
Meeting Room 2
Walkergate Park Hospital
Benfield Road
Newcastle upon Tyne
NE6 4QD
Next in person meetings
Come and join other people affected by Huntington's disease for advice, support and a good chat.
Meetings are held between 1.30pm and 3.30pm.
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Sunday 14 January
-
Sunday 17 March
-
Sunday 12 May
Key contact
David Whalley
northumberlandtyneandwearhdagroup@gmail.com
Specialist Huntington's Disease Adviser
Ivy Broadhead
01914 064974
