London marathon 2025
Running events
We are pleased to invite you to a peer support meeting for young adults (aged 18 - 40) affected by Huntington's disease.
Our next young adults event will be held in London.
Whether you have the gene and are symptom-free, have early symptoms, have tested negative for the disease or you or your loved one is at risk of the condition, this event is for you. This is a great opportunity to meet with others in a similar situation. We will also be joined by a number of speakers from the Huntington's community.
We will be welcoming Dr Lauren Byrne, Principle Investigator at UCL, who will be talking about research and getting involved. Dr Byrne will provide some insights on Huntington's research including recent updates, what it's like to participate, and why now, it's more important than ever that young adults impacted by Huntington's to engage.
We will also be welcoming ambassadors and other members of the community to share their own experiences surrounding these topics. We will finish the day with a peer support session, where people can talk to each other and get to know one another. There will be plenty of opportunities throughout the day to share experiences and ideas, and ask questions.
Topics
- Talking about research and getting involved
- Discussing the transition from the youth service into the young adults group and what we can offer after the young adult age range
- Experiences and tips from carers
- How to get involved in being an ambassador, being part of HD Voice or joining a branch
Event information
Lunch and refreshments will be provided and there will be time to meet and talk to other young adults (aged 18 - 40) affected by Huntington’s disease during the event.
The event will be held at The Phoenix Gardens, 21 Stacey St, London, WC2H 8DG, from 12pm until 5pm.