London marathon 2026
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Join us at our in-person Huntington's disease Community Conference and AGM. Hear from acclaimed speakers and connect with and learn from other members of the Huntington community.
This year's conference will take place across two days with the AGM and community conference taking place on the Saturday and interactive workshops taking place on the Sunday. There is the option to join for one or both days and also the option for an overnight stay.
Saturday 26 October 2024
We will be joined by a number of well-renowned speakers in the Huntington's community, with extensive knowledge of care, support, and research including:
- Cath Stanley, Chief Executive of the Huntington's Disease Association with an overview of 2023/2024 for the charity.
- Professor Hugh Rickards, Neuropsychiatrist and Chair of the Huntington's Disease Association talking about future plans for the charity and leading the Annual General Meeting*, which includes the appointment of trustees, auditors, and a financial update by our Treasurer, Nick Heath.
- A personal perspective on living with Huntington's disease.
- Professor Ed Wild, Professor of Neurology at UCL, Associate Director of UCL Huntington's Disease Centre, and a Consultant Neurologist at the National Hospital for Neurology and Neurosurgery, providing an update on current and proposed research trials for Huntington's disease.
In the evening, we will join together for a three-course dinner and disco which will take place in Crewe Hall's spectacular Long Gallery which dates back to Jacobean times.
Children and young people attending (up to 17 years) will have the option to join off-site activities with our Specialist Youth Engagement team. In previous years, these have included activities such as bowling, laser quest, escape rooms and theme parks.
Sunday 27 October 2024
We will be running smaller more interactive workshops that you choose from. In previous years, these have included a range of topics such as relaxation techniques, reflexology, psychological strategies and preparing for the future.
Children and young people will join our Specialist Youth Workers for further activities on-site, in previous years, these have included swimming, film morning and arts and crafts.
Is this event for you?
This event is for everyone affected by Huntington’s disease, whether family, friends, individuals or professional to come together to understand more about the disease.
How to book
We have created a number of different ticket types in Eventbrite to help you to attend in a way that best suits you - whether that's for the full weekend or one day only.
You will be asked to provide room preferences and additional information, such as accessibility and dietary requirements, after you have selected your ticket types.
The venue
This year, in the return of our in-person community conference and annual general meeting, we will be hosting the event in the beautiful Crewe Hall.
Picturesque location
Accessible and family rooms
Restaurant catering
Historic venue
What to expect?
Below you can find out more about our speakers and workshops that will be taking place across the weekend at our family conference.
Meet the speakers at this year's Huntington's community conference
Professionals, Support
Are you attending one of our workshops?
Awareness, Support
Annual General Meeting
Formal notice of the Annual General Meeting can be found below.
For more information on what information we collect and how we use it when booking onto one of our events, please see our privacy policy on our website.
Event sponsor
This year's event is sponsored by Sage Therapeutics and Wave Life Sciences. We are very grateful for their dedication to Huntington's disease research and for helping make this event possible.
We also thank our other sponsors, Roche, UniQure, and Prilenia. Their contributions make this event possible.
