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The purpose of this research study is to understand people’s attitudes toward taking a predictive genetic test for Huntington’s disease and the psychological consequences of testing on an individual’s well-being. Specifically, we are interested in comparing the well-being of individuals who have versus have not taken a genetic test before developing Huntington's disease symptoms.
This study has been created by London Business School.
They would like to donate £2 for each individual who completes the survey within one month to the Huntington’s Disease Association.
This study is a 5–10 minute online survey which contains several questions that assess individuals’ psychological well-being. Participants will also be asked to answer these questions and report whether they have taken a genetic test and when they started developing Huntington's symptoms.
You can get involved in the study if you fit the following criteria:
Please contact Simona Botti or Selin Goksel.
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