Having Huntington’s disease in the family can be challenging. At times like these, it can help to meet people who know what you’re going through. Many people find comfort in meeting others who face similar challenges as they can relate to each other’s experiences.
Huntington’s Disease Association branches and support groups are run by volunteers. Groups meet up and down the country for a mixture of social activities, information sessions, fundraising and awareness raising – and always a good chat.
The groups are informal and are run to meet the needs for the people who attend.
For more information about branches and support groups or to find out the contact details of your nearest group email firstname.lastname@example.org or call 0151 331 5444.
After 15 years of being told my wife had paranoid schizophrenia and depression, we were suddenly confronted with clear evidence she had Huntington’s.
I found our local specialist adviser and spent nearly two hours on the telephone with her. Being able to talk to someone who understood not only my distress but also the years of uncertainty and worry that we had all been living through was a huge relief.
A short time later, she started a support group and I was one of the founding members. Being involved helps me to understand all the ways Huntington’s can affect people.Learn more