Get involved in research studies 2026
Studies, Research
Research come in many forms. Some may require you to speak to them about your experience, others may require meetings with medical professionals or taking part in focus groups.
How can I take part in clinical trials?
The best way to take part in a clinical trial is through your neurologist or Huntington's disease specialist. They will be able to advise you on which trials you may be suitable for.
There are also websites where you can see what trials there are:
Below is a short video from HDYO about taking part in research.
Get involved in research studies
Research is not just about medical trials; you can get involved in other types of research as well.
You can find out more about current and past studies in this section of the website. If you want to be notified when we have new studies to take part in, you can sign up to our mailing list at the bottom of this page.
Currently recruiting research studies
Clinician perspectives of working with anticipatory grief in Huntington’s disease
Studies
A study for those at risk of Huntington’s disease who haven’t had genetic testing
Research
Be part of research
If you want to see what clinical trials are available if you wish to take part in clinical trials, you can finds out what trials are taking place and where they are recruiting on the National Institute of Health website.
HD Voice
HD Voice is a panel of volunteers who help researchers learn about the needs of families living with Huntington’s. They work on different projects to help researchers plan and develop their ideas. If you wish to be a part of HD Voice, please read the information below.
Research studies stories...
Studies...
Past research studies
Trigger Warning: Research study - conversations about death and dying
Research
DRUM AI - research opportunity
Research, Studies
Results on research exploring psychological self-care in people with pre-manifest Huntington's
Studies
Two studies looking at eating in Huntington's disease
Studies
Integrate-HD Survey: Unveiling care challenges for the Huntington’s disease community
Studies
Psychosocial impacts and support needs of young people in Huntington's families
Studies
The psychosocial implications of receiving a grey area genetic test result
Studies
Attitudes towards Huntington's disease genetic testing
Studies
Implementing physiotherapy guidelines in Huntington’s disease
Research, Studies
Integrate-HD II research study
Studies
Wellbeing focus group
Research, Studies
Integrate-HD study
Studies
Research opportunity - to create a trial a music therapy programme
Guided self-help for anxiety for people with Huntington's disease
Studies
Social cognition in Huntington's disease
Studies
