Jenny's story
Jenny knew she had to be proactive in seeking help for herself and her husband. She says, “With the Huntington’s Disease Association’s support, I was gradually able to see for myself how Huntington’s disease was affecting me and the profound impact on my family over previous years. I have also encouraged family to seek support.” Both Jenny and her husband have benefited from support groups. Jenny attends a gene-positive group that she set up in her area, and her husband attends a carers group. They have both made friends from these support groups. They have also found support through Huntington’s disease-based therapies that have been part of the charity’s research into better mental health support for people affected by Huntington’s.
Sometimes it can feel that my Huntington’s disease is all that I am now. However, I do have a past. The Huntington’s Disease Association has helped me believe I still have a future.







