Our Annual Report is created in line with our vision, mission and values, and our five-year strategy.


Our 2025/2026 report and accounts documents our impact, progress and achievements from the last year. 

You can read the full report and accounts below.

Annual Report 2025/2026

Jenny's story

Jenny knew she had to be proactive in seeking help for herself and her husband. She says, “With the Huntington’s Disease Association’s support, I was gradually able to see for myself how Huntington’s disease was affecting me and the profound impact on my family over previous years. I have also encouraged family to seek support.” Both Jenny and her husband have benefited from support groups. Jenny attends a gene-positive group that she set up in her area, and her husband attends a carers group. They have both made friends from these support groups. They have also found support through Huntington’s disease-based therapies that have been part of the charity’s research into better mental health support for people affected by Huntington’s.
Sometimes it can feel that my Huntington’s disease is all that I am now. However, I do have a past. The Huntington’s Disease Association has helped me believe I still have a future.

Read Jenny's full story

Acceptance and commitment therapy blog

Annual Report 2025/2026

You can read the full report and accounts below.

Annual Report 2025/2026

You can see an overview of the impact the Huntington's Disease Association has had between 2023 and 2024 below.

Annual report 2025 / 2026

A note from Cath Stanley BEM

Every day, we draw inspiration from our brilliant community of families, supporters, volunteers, campaigners, partners and professionals. Together, we have the power to build a better life for people affected by Huntington's disease.
Cath (1)