HDWalk
Built around the idea that every step tells a story, HDWalk had 31 people take part this year raising an incredible £9,118.67.
This year's theme was Behind the Gene.
The invisible challenges and untold stories of Huntington’s disease.
Too often, people affected by Huntington's disease find themselves educating the public about their condition.
Not everyone has heard of Huntington’s disease, and that includes healthcare professionals. A staggering 85% of 150 people asked in a recent survey had to educate a doctor, nurse or healthcare professional about Huntington’s disease. This is just one of the many challenges the Huntington’s community faces. We are trying to change this.
Community involvement
The involvement in this year's awareness month has been incredible.
The factsheet distribution packs were sent out to 89 people and these were taken to local GPs, hospitals, care homes, or any healthcare setting where there is an opportunity to raise awareness and encourage training around Huntington's disease.
How our community got involved
Hosting pop-up events
26 members of the community hosted awareness raising or fundraising pop-up events in their local area. They were in hospitals, clinics, care homes, restaurants, shopping centers and more.
Distributing factsheets
89 people registered to deliver awareness factsheets to healthcare settings in their local area. Last year 25 areas were covered.
Shared your stories
The theme was, your life in a Huntington's family and what you wish others knew about Huntington's disease.
Press release templates
Local press love real stories and this is a great way to raise awareness. We created templates for the community to use.
Using our social badges and graphics
People showed their support this awareness month by changing their profile picture and sharing our graphics.
Read the stories from the Huntington's community
Behind the gene - Susan's story
Awareness, Carers, Community stories
Behind the gene - Dawn's story
Awareness, Community stories, Youth engagement service, Carers
Behind the gene - Lisa's story
Awareness, Community stories, Carers
People with Huntington’s disease deserve to get the best care possible
Professionals, Support
Behind the gene - Becky's story
Community stories, Awareness
Behind the gene - Maureen's story
Awareness, Community stories
Educating health and social care professionals
What we do
We support adults and families
We support children and young people
