We hosted an in-person information and peer support event for young adults affected by Huntington's disease.
We hosted our second event for young adults earlier in the year which took place in London. The focus of this event was:
- Support for young adults
- How we can make the transition from the youth engagement service to young adults comfortable
- Getting involved in research
It was helpful to hear information around support, research and meet others.
We also had inspiring talks from members of the community
Sharon Gorrie, London Branch
Being involved with branches and what they do
Dan Johnstone, Huntington's Ambassador
Dan’s Journey - what an ambassador does and what it means to him
Rebecca Hardwick, HD Youth Voice
HD Youth Voice and her experience
When attendees were asked about the positives from the event were, one said:
Feeling engaged with the Huntington's community when I’ve been scared to before – a sense of connection. Informative presentation from Lauren [Huntington's research] that gives me hope for a better future for Huntington's disease.
Next event
Please join us in September for a weekend event with an overnight stay. This is a great opportunity to meet others who have Huntington’s in their family and participate in group activities, hear from our speakers, and benefit from peer support and social events.
Young adults (18-40) event
5 April 2025 - 11:00am
Youth engagement service, Support, In person