Are you at risk of Huntington’s and haven’t undergone genetic testing?
About the study:
This study from Cardiff University will explore what it’s like to be at risk for Huntington’s disease in 2026, at a time when there is hope for new treatments. The researcher would also like to understand your thoughts around genetic testing.
This study aims to:
Help Genetic Counsellors support individuals who are considering their testing options.
Who can take part:
Adults aged 18+ who are at risk, but who have not yet undergone pre-symptomatic genetic testing.
How to get involved:
If you would like to get involved in this study, please fill in the screening form below:
Clare will then get in touch to arrange a 45 – 60-minute interview which will take place either online or over the phone.
Please note that the interview will be transcribed using secure software and analysed using thematic analysis.
If you have any questions about the study, please contact the researcher, Clare, at ConroyC@cardiff.ac.uk or her research supervisor, Dr Shane Doheny, at DohenyS1@cardiff.ac.uk
Study closes on 01 March 2027
Get involved in other studies
If you want to find out more about taking part in free and paid research studies or see the results of past studies that our community have been involved in, please visit the page below.