Our Juvenile Huntington's disease family weekend is for children or young people affected by Juvenile Huntington's disease and their families.


It's an amazing opportunity for young people with the disease and their siblings to take part in some great activities – from canoeing to abseiling! The Juvenile Huntington's disease family weekend provides an opportunity for all the family to share information and learn more about Juvenile Huntington's disease in a relaxed and informal setting.

This year there is also an option to stay an additional night until the Monday. 


To enquire about booking a place, please fill out the form below.

Enquiry form

For more information on the weekend, please contact Helen Santini at helen.santini@hda.org.uk

Previous family weekend's

Juvenile Huntington's disease

Juvenile Huntington's disease family weekend 2023

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JHD family weekend - Walking - Consent

Juvenile Huntington’s disease family weekend

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