We all eagerly returned to the Calvert Trust for our annual Juvenile Huntington's disease family weekend.

For those who had been before a year has passed very quickly, and we loved welcoming those who were coming new for the first time as well.

One family member said:

“Time to be with others who truly understand and the opportunity to talk without the fear of judgement.”

This is a fun activity weekend for those affected by Juvenile Huntington's disease and their families. We had especially beautiful weather for the whole weekend this year, and we made the most of it! We offer a programme for both the young person with Juvenile Huntington's disease, their siblings and for parents.

Another family member said:

“Friendly fun time which brings people in the same situation together.”

Activities this year included: canoeing, rock-climbing, swimming and a trip to a wildlife park. On the Saturday evening, we had a Harry Potter party (by popular demand) and a magician. It has been lovely to see families make connections that last outside of the weekend and we hope we will be able to welcome lots of families again next year, whether you've been before or not - we already have lots of lovely plans and ideas brewing.

Thank you so much to the Calvert Trust for another successful family weekend.

“It was all excellent – the staff were amazing, venue amazing, weather amazing!”

JHD Family weekend 2023 -2 

Other support for Juvenile Huntington's families

We also run regular Juvenile Huntington's disease Zoom meetings, and this has been a great opportunity for families to meet each other before coming on the weekend, as well as to stay in touch more regularly for those who have. If you have any questions about the weekend or about the virtual meetings, please contact Helen Santini on helen.santini@hda.org.uk or 01279 507656.

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Online Juvenile Huntington's disease family groups

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