Location
Online
Social workers play an important role in supporting those impacted by Huntington's disease
Huntington's disease is a rare, progressive neurological condition, and many professionals feel uncertain about how best to support individuals and families affected by it.
In this webinar, hosted by Specialist Advisers from the Huntington's Disease Association, we will introduce the Social work for adults living with Huntington's disease professional guideline, launched by the Huntington's Disease Association in May 2026.
This guideline has been developed to provide social workers and other health and social care professionals with a clear and accessible starting point, helping to build confidence and support further learning. It has been endorsed both by the European Huntington's Disease Network (EHDN) and the British Association of Social Workers (BASW).
During the webinar, we will explore the key recommendations within the guideline, and discuss how they can support social work practice across the different stages of Huntington's disease.
We will also hear from people living in families affected by Huntington's disease about their experiences of accessing social care, alongside social workers reflecting on the guidance and its practical application.
Meet your speaker:
Megan - Huntington's Disease Association Ambassador, Youth Voice member, and Social Worker
Megan is a Huntington’s Disease Association Ambassador and part of a young steering group, Huntington’s Disease Youth Voice (HDYV). She was a young carer from the age of 12 after her dad was diagnosed with Huntington’s disease in 2012. Megan had to navigate the social care system from a young age, which led her to want to become a Social Worker herself. She studied a Health and Social Care degree at University, and is now a practising Social Worker.
