Join us for an event where you will get the chance to meet others affected by Huntington's disease, hear informative talks and take part in engaging activities.

The event is open to anyone affected by Huntington's disease in Dorset, Hampshire and surrounding areas. Our Youth Worker, Jack Crockford, from our Youth Engagement Service - HDYES will be on hand to take part in activities with the children throughout the day.

The day will allow you to meet other people and families in a similar situation to you, the opportunity to listen to informative and valuable talks on testing, family planning and advanced Huntington's, followed by relaxing yoga and art sessions towards the end of the day.

Register here

The event has been funded by the Huntington's Disease Association Hampshire and Isle of Wight Branch.

Event programme

10.00am

Registration and refreshments

10.15am

Talk on Genetic testing and family planning

Dr Sue Ingamells - Consultant obstetrician and Gynaecologist - TFP Wessex Fertility Centre

Sue has a specialist interest in IVF and an extensive knowledge of Huntington's disease, embryology, and genetic testing. This talk will cover preparation for IVF, IVF processes, embryo creation, embryo biopsy and genetic testing.

11.00am

Refreshment break

11.15am

Supporting people in advanced Huntington's

Cathy Lyon End of Life Doula - and Huntington's Disease Association Trustee

Cathy brings a wealth of knowledge of working with people who have Huntington's disease and their families - Cathy shares her experience of supporting people who have advanced Huntington's disease and the care and professionals who should be involved.

12.00pm

Maureen Graham - Personal Huntington's disease experience

Maureen is currently caring for her third-generation family member who has Huntington's disease. She talks about her experience and support from Rowans Hospice.

12.15pm

Lunch

1.15pm

Yoga and art activity

2.00pm

Hampshire branch 30th birthday celebration with tea and cake

2.30pm

Yoga and art activity

3.15pm

Closing remarks

Last year's family event