How will you get involved in this year's Rare Disease Day on Friday 28 February?


Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.

Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse– but united in purpose.

Want to get involved? 

Head over to the Rare Disease Day website

From there you can find all the materials you need to raise awareness and instigate change for people living with a rare disease. Including Social media posts, posters, information packs, tool kits, fact sheets, infographics and more!

Rare Disease Day downloads 


Watch the video to see what the day is all about!