Join our call to improve a broken care funding process.


Today the Huntington's Disease Organisation is joining 11 other health charities to launch a joint petition urging the Health Secretary to reform NHS continuing healthcare (CHC) funding.

Add your name now 

When someone in England has complex, life-limiting needs, NHS CHC should cover the full cost of their care, either at home or in a care home. But too many people with Huntington's disease miss out because the assessment process is combative, inconsistent, and traumatic for families.

We have a rare opportunity to change this. The UK Government has tasked an independent group called the Casey Commission with reviewing England’s social care system, including the NHS CHC funding process.

By signing the petition, you can help make sure those with complex health needs – and the families that support them - are heard. Together, we can push for an NHS CHC process that’s fairer and reliable.

Will you sign the petition? It only takes a minute to add your name. The more of us who sign it, the stronger our voices are.

 Yes, I’ll add my name

Thank you. Together, we can keep pushing for a better NHS CHC funding system for everyone.

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