Congratulations to one of our fundraisers, Harley for winning 'Fundraiser of the Year' award in the Solent region.

Harley was a well-deserved winner of this award and was recognised for his outstanding fundraising efforts for Huntington's Disease Association and other charities over the past five years.

Special acknowledgement was given for his 50:50 challenge which Harley created to help celebrate 50 years of the Huntington's Disease Association. For this fundraiser he set himself 50 challenges over 50 dates all decided by a flip of a coin - an analogy often used in the Huntington's community to show the 50/50 risk of the faulty gene being passed on to the next generation.

Follow Harley's fundraising Instagram

The awards took place at St Mary’s Stadium, Southampton. Harley attended the awards ceremony with his mum Vanessa and their local Specialist Adviser, Eve. Harley was one of four finalists for this region along with friend and fellow fundraiser, Jess Webb. This means we had two Huntington's Disease Association fundraisers both up for the 'Fundraiser of the Year' award in that region. Well done to both for representing the Huntington's community at the awards.

Vanessa [Harley's mum] said:

“Harley consistently overcomes the challenges of his multiple disabilities including being an amputee, having autism and Tourette’s to go over and beyond to raise awareness and funds through multiple challenges which push him out of his comfort zone.”

View this year's BBC's Make a Difference winners

BBC fundraiser

Harley pictured on the red carpet and shared by BBC Radio Solent.

In October, Harley also took part in the Great South Run. You can find out more on his Just Giving page