We were delighted to be part of a Health Services Journal (HSJ) roundtable, commissioned and funded by Roche, it explored some of the challenges facing people with Huntington’s disease and what can be done to ensure the best care for this group of patients. The roundtable took place in May during Huntington's disease awareness month, part of #HuntingtonsInMind and the video and article have just been released.
Discussion Topics:
Exploring Effective Solutions - the complexity of Huntington’s means that many services may be involved in the course of a patient’s journey.
The Surrey Experience - the work in Surrey has led to the development of a blueprint for services which could be used at regional and national levels, allowing both patients with Huntington’s and their carers to look at potential solutions. Find out more about the Surrey experience.
You can watch the discussion to find out more:
Read the HSJ article
Roundtable: Providing patients with Huntington’s the care they need
On the panel:
- Peter Carpenter, service delivery director, Kent Surrey Sussex Academic Health Science Network
- Dr Sian Jones, GP, Surrey
- Dr Nayana Lahiri, consultant clinical geneticist, St George’s University Hospitals Foundation Trust
- Professor Hugh Rickards, consultant in neuropsychiatry, Birmingham and Solihull Mental Health Foundation Trust and chair, the Huntington’s Disease Association
- Cath Stanley, chief executive, Huntington’s Disease Association
- Professor Adrian Williams, chair of neurosciences clinical reference group, NHS England; and consultant, University Hospitals Birmingham Foundation Trust
- Claire Read, HSJ contributor – roundtable chair
Who is Health Service Journal?
HSJ provides a deep understanding of the NHS through a wide range of services and solutions – news, analysis, insight, data, live networking events and unique best practice database – aimed at senior management, decision-makers and policy makers in the UK healthcare industry.