Holly's story
To show the impact that cognitive impairment has on people affected by Huntington's disease and members of the family we spoke to Holly who has Juvenile Huntington's disease.
We have some powerful stories from the Huntington's disease community
Jen's story
To show the impact that cognitive impairment has on people affected by Huntington's disease and members of the family we spoke to Jen who's mum had Huntington's disease.
Becki's story
Becki bravely shares her story, from being homeless after her Huntington's diagnosis to now being in a supportive care home thanks to the hard work and dedication of Anita Daly, our Merseyside Specialist Huntington's Disease Adviser.
David's story
As part of our #HuntingtonsInMind campaign we spoke to David who has shared his story about how he has been affected by Huntington's diease.
Alison's story
As part of our #HuntingtonsInMind campaign we spoke to Alison who has shared her story about caring for her husband, daughter and son who all have Huntington's disease.
Charlie's story
As part of our #HuntingtonsInMind campaign we spoke to Charlie who has shared her story about how she has been affected by Huntington's diease.
Nikki's story
We sat down with Nikki, one our our service users to talk to her about how the Huntington's Disease Association has supported her through her journey.
Caring for a loved one with Huntington's disease
In this video, we hear from Steve Duckett as he gives a useful and honest interview about being a full-time carer for a loved one affected by Huntington's disease.
In coversation with Charles Sabine
Charles Sabine OBE, a former Emmy-winning news journalist for NBC, is a tireless global campaigner for the Huntington's Community. Coming from a Huntington's family himself, Charles discovered in 2006 that he also carried the expanded gene and in this video he talks about his experiences and how he manages the disease.
In conversation with Siobhan
In this episode we are joined by Siobhan who openly shares her pre-implantation genetic diagnosis (PGD) journey.
In conversaion with Sarah Winckless and Sean
In this video we are joined by Sarah Winckless MBE and Sean who together share stories and anecdotes from their life in Huntington's families. It is lighthearted, humorous and heartwarming.
In conversation with Melanie Pearson
In this video we are joined by Melanie Pearson who talks about the impact of Huntington's disease on her family and about why it inspired her to write a book.
