If you're an older carer

Welcome to the older carers' section of the Huntington's Disease Association website. This is a resource primarily for people who care for a family member with Huntington's disease and are 65 years and over. We recognise that those in this age group may have some differing needs to other carers in relation to their own health, well-being and other circumstances.

Within these pages, you will find an array of resources including written guides, helpful videos and suggested places to find advice. We also have a dedicated online community, the Pop-In-Cafe so please do come and join us there to ask questions and share experiences.

Under 65? Don't worry - you are very welcome to also use the web pages and may find many resources that are helpful to you!

Useful resources

Peer support opportunities

Online Carer Groups


We are running carers groups using zoom. We host one afternoon session and one evening session a month. They are a great way to talk to other carers and share experiences. If you would like to find out more, please contact our central office on 0151 331 5444 or by emailing [email protected] who will be able to give you more information on sessions.



Virtual Pop-In-Cafe


Our virtual Pop-In-Cafe is run through the Huntington's Disease Association message board and is managed, moderated and read by staff from the Huntington’s Disease Association. If you have access to the internet and a working email address you will be able to join!

If you are joining us for the first time, you will need to register and create a new account within our message board. You can download a booklet here that guides you through the registration process. If you would rather a hard copy, please contact us on 0151 331 5444 or at [email protected] and we will post you a copy of the booklet.


Branches and Support Groups


Many of our branches and support groups are running online during COVID-19. Have a look here to see if there is a group close to you.


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