Young people with Juvenile Huntington’s and their families need plenty of support to help them at different stages. As the disease progresses, symptoms and needs change too.
You’ll find a lot of information in this section about the different kinds of help and support available.
Types of specialists that may be involved with your child’s care:
Living with Juvenile Huntington’s disease can be very difficult for children and young people and their families, but the right care and support can make a huge difference.
HDA’s specialist adviser on Juvenile Huntington’s, Helen Santini, is happy to help you find what you’re looking for and answer any questions you have. You can reach her on [email protected] or 01279 507656.