If you’re in a family that has someone in it with Huntington’s (sometimes also called HD), you’re likely to have a lot of strong feelings about it and perhaps some questions or things going on that you don’t understand. So it’s very important that you have someone to talk to. If people know what’s going on for you, they can try and help you.
Sometimes it helps to talk to someone you know and trust, such as friends, family, a doctor or teachers. Sometimes you might want to talk to someone whose job it is to help children in situations like yours. And sometimes you might find that it helps to talk to other children like you, who are affected by Huntington’s.
Growing up with Huntington’s in your life can be very difficult at times. You should never feel that you have to face things alone. You can always contact us for help and support.
You can now order our booklet for primary school aged children by emailing firstname.lastname@example.org or by calling 0151 331 5444. Alternatively you can download a copy here. An information leaflet on how to use the guide can be downloaded here.