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Huntington's disease bereaved sessions

13 January 2026 - 24 March 2026, 10:00am - 11:30am

Support

Fully booked

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Keeping yourself in mind: an ACT-informed programme for people with early symptoms of Huntington's disease

21 January 2026 - 11 March 2026, 10:00am - 11:30am

Support

Fully booked

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Keeping yourself in mind: an ACT-informed programme for those who are at risk for Huntington's

21 January 2026 - 11 March 2026, 6:30pm - 8:00pm

Support

Fully booked

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HDYES Escape room

Escape room event for young people: North Wales

17 February 2026, 11:45am - 2:15pm

Youth engagement service

In person

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Online Juvenile Huntington's disease family groups

24 February 2026, 4:00pm - 5:30pm

24 March 2026, 4:00pm - 5:30pm

28 April 2026, 4:00pm - 5:30pm

30 June 2026, 4:00pm - 5:30pm

Support, For families

Monthly events

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Overview of Huntington's disease for care staff

25 February 2026, 2:00pm - 3:30pm

25 March 2026, 2:00pm - 3:30pm

29 April 2026, 2:00pm - 3:30pm

27 May 2026, 2:00pm - 3:30pm

17 June 2026, 2:00pm - 3:30pm

For professionals

Monthly events

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Online carer support group

3 March 2026, 7:00pm - 8:00pm

7 April 2026, 7:00pm - 8:00pm

5 May 2026, 7:00pm - 8:00pm

2 June 2026, 7:00pm - 8:00pm

7 July 2026, 7:00pm - 8:00pm

4 August 2026, 7:00pm - 8:00pm

1 September 2026, 7:00pm - 8:00pm

6 October 2026, 7:00pm - 8:00pm

3 November 2026, 7:00pm - 8:00pm

1 December 2026, 7:00pm - 8:00pm

Support

Monthly events

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Finding your way: What help is available for families living with Huntington's disease

4 March 2026, 2:00pm - 3:00pm

14 April 2026, 2:00pm - 3:00pm

13 May 2026, 7:00pm - 8:00pm

11 June 2026, 2:00pm - 3:00pm

For families, For professionals, Support, Youth engagement service

Monthly events

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Young adults peer support group

16 March 2026, 7:00pm - 8:00pm

18 May 2026, 7:00pm - 8:00pm

21 July 2026, 7:00pm - 8:00pm

Support, Youth engagement service

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Mental health study day

Mental health and Huntington's disease: a study day for professionals

18 March 2026, 9:00am - 4:00pm

For professionals

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First aid

Online first aid workshop for Huntington's families and carers

24 March 2026, 1:00pm - 2:30pm

Support

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Sealife trip for young people: Birmingham

31 March 2026, 11:00am - 1:45pm

Youth engagement service

In person

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Escape room event for young people: Cardiff

7 April 2026, 11:00am - 1:45pm

Youth engagement service

In person

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HDYES York Dungeons

Dungeons trip for young people: York

8 April 2026, 11:00am - 1:45pm

Youth engagement service

In person

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Parents of adult children at risk

10 April 2026 - 8 May 2026, 10:00am - 11:30am

Support, For families, Youth engagement service

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Navigating Huntington’s: Supporting parents and empowering families

10 April 2026 - 1 May 2026, 10:00am - 11:30am

For families, Support, Youth engagement service

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Understanding thinking and behaviour in Huntington's: an online workshop for family carers

17 April 2026, 2:00pm - 4:00pm

For families, Support

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Young adults 18-40

Young adults (18-40) in-person event

18 April 2026, 11:30am - 4:30pm

For families, Youth engagement service

In person

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Care and symptom management webinar

Care and symptom management in late stage Huntington's disease

22 April 2026, 1:00pm - 2:00pm

For families, For professionals, Support

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Speech and language therapy for people who have Huntington's

Speech and language therapy for people who have Huntington's disease

12 May 2026, 1:00pm - 2:00pm

For professionals

Lunchtime event

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Juvenile Huntington's disease family weekend 2026

29 May 2026 - 1 June 2026

For families, Youth engagement service

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Understanding Huntington's disease - A certified course for healthcare professionals

22 June 2026 - 24 June 2026, 9:00am - 3:15pm

For professionals

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Lucy Marquis - Cycling - Consent 2023

London to Paris cycle 2026

23 September 2026 - 26 September 2026

Cycling events

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Huntington’s disease youth residential (ages 8–17) – August 2026

Youth engagement service

In person

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HD Champions

HD Champions Course

For professionals

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