Our Juvenile Huntington's disease family weekend is for children or young people affected by Juvenile Huntington's disease and their families.


Our Juvenile Huntington's disease family weekend is an annual weekend away open to children, teenagers and young adults affected by Juvenile Huntington's, their parents and any siblings.

The weekend consists of a range of family activities and an individual programme offered for those with Juvenile Huntington's disease and any children or siblings and a separate programme for the parents and carers.

The closing date for bookings is Friday 28 February 2025, and bookings may not be taken after this date.

Places are limited and will be allocated on a first come, first served basis so please book early to avoid disappointment.

 


If you have any queries about the weekend or want to know more about what happens, please contact Helen Santini on 01279 507656 or helen.santini@hda.org.uk 

To enquire about booking a place, please fill out the form below.

Enquiry form

Families usually arrange their own travel, although if you need any assistance or would prefer to come by train and would like to be picked up at a local station, please contact us.

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