What we do

We improve care and support services for people with Huntington's disease, educate families and professionals, and champion people's rights.

Our services

Specialist Huntington's Disease Advisory Service

Our Specialist Huntington’s Disease Advisory service is delivered by our team of Specialist Huntington’s Disease Advisers.

Youth Engagement Service

Our Youth Engagement Service (HDYES) works with young people whose families are affected by Huntington’s.

Training for healthcare professionals

Huntington’s disease is rare and complex. We run essential professional development courses for any health social care practitioner working with Huntington’s patients.

Get in touch

Offering advice, support and information


Become a member of the Huntington’s Disease Association and get access expert information and our twice yearly magazine.

Learn more

Our impact

Take a look at our latest annual review to find out about the difference we make to the lives of people facing Huntington’s disease.

Click here to download