A thank you from a parent.
We are incredibly grateful to the Huntington’s Disease Association for providing Harry and Bella with an unforgettable two-night camp experience at Boundless Outdoors.
For our children, camp is far more than just a two-night getaway. Harry and Bella live with the reality of Huntington’s everyday, and this reality can bring worries and uncertainties into their young lives, something no child should have to bear alone. That’s why the youth engagement team are invaluable, experiences like this camp hold such significance to them and I just wanted to say thank you.
Being surrounded by other young people who understand what it’s like to have Huntington’s in their family gives Harry and Bella a truly special sense of belonging. They can talk, laugh, create memories and simply be themselves without having to explain the feelings and experiences associated with Huntington’s disease. They know they’re not alone.
We want to express our deepest gratitude to Jack, James, Nadia and everyone who supports the children at camp. Your efforts are truly remarkable. You create a safe, happy and supportive environment where our children can momentarily forget about the stresses and worries of Huntington’s disease.
For us as parents, this support is equally important. Knowing that Harry and Bella are somewhere they are understood, cared for and having fun provides a precious sense of relief and respite from the responsibilities and worries that come with Huntington’s. Camp has become an integral part of Harry and Bella’s Huntington’s journey. It’s something they eagerly anticipate, fostering friendships, confidence and creating cherished memories. It’s something we genuinely can’t imagine being without.
Thank you for giving them a place where they never feel alone.
Thank you for providing them with a community.
Thank you for allowing them to simply be children.
And thank you for supporting not just Harry and Bella, but all the young people and families affected by Huntington’s disease. We truly cannot thank you enough, Hannah.
The Big Give
We are fortunate enough to secure match funding with the Big Give so long as we meet a fundraising target. For one week, between 1 December and 8 December our donations will be doubled. We need to raise £10,500 in order to reach our £21,000 target.
If you donate £10, this will be doubled to £20, £50 would be doubled to £100 and so on. This is a great opportunity to make your money go further and help us reach our target of £21,000. If we don’t meet our campaign target, we may have to reduce or cancel our HDYES summer camp 2027. Be part of the community that makes next year's camp possible. Your support can help young people facing the challenges of Huntington's disease feel understood and less alone.
You can find out more about the Big Give below. If you want to hear from us as soon as the campaign is open, please fill out the registration form and we will be in touch on 1 December.
