Going for a meal or a drink can sometimes be stressful when you have Huntington’s. 

If you or your loved one finds the thought of going to a cafe, restaurant or pub worrying or stressful. We have compiled some top tips to help make your visit go smoothly.

Before you go

  • Plan ahead to avoid busy times as these can be stressful.
  • If there is a ‘favourite’ table, book ahead if possible so that you are able to use it - or to give time to prepare the person with Huntington’s if it is going to be necessary to sit elsewhere.
  • If it is possible to look at the menu online at home then this may take some of the pressure off making decisions when you are out.
  • Take your ‘I have Huntington's disease’ card – available from the Huntington’s Disease Association*.
  • If waiting is difficult it may help to take something - e.g. game, puzzle, phone -to fill the time while waiting for food to be served.

When you are out

  • It may help to find a quiet spot in the restaurant or pub as this will make it easier for the person with Huntington’s to think. Sitting facing away from a busy room may help concentration.
  • If there is an extensive menu, it may help to narrow the choice down to a few options that you know the person with Huntington’s will enjoy.
  • A chair with arms can help make standing up easier.
  • Know where the toilets are so you don't have to find them in a hurry.
  • Download the leaflet to show to staff

Download the leaflet

'I have Huntington's disease' ID cards

Did you know that we provide 'I have Huntington's disease' ID cards that we can personalise with your name / your loved one's name and emergency contact details? The card can be kept in a purse or wallet or put in a card holder on a lanyard (not provided). Please email info@hda.org.uk with the following information:

  • Full name
  • Emergency contact name
  • Emergency contact mobile number
  • Emergency contact landline number
  • Your address (to post the card to)

ID cards for England and Wales only.

Huntington's ID Card (6)

Carer top tip

Hannah, a Huntington's disease carer says:

We do often find we now return to the same pubs or restaurants so they are familiar to Stu and the staff understand his needs.