We want the government to think again on its planned changes to disability benefits.
The government has published a consultation, asking for the public’s views on their proposed changes to disability benefits, which could make it harder to access Personal Independence Payment (PIP). For many people living with Huntington’s disease, these benefits are an essential lifeline.
Help us fight these proposals by taking part in our short survey, which is open until 02 June 2025. It takes less than ten minutes to complete. The results of this survey will be included in our response to this consultation.
You can complete this survey if in the last five years you have:
- Made your own application for PIP
- Supported someone with their PIP claim (such as by helping them complete the form)
- Had your own PIP claim reviewed by the Department of Work and Pensions (DWP)
- Supported someone to respond to a review of their PIP claim (such as by helping them fill in the form the DWP has asked them to complete)
When are the government’s changes to disability benefits happening?
We understand that hearing about the government's plans for disability benefits can cause distress to people living with Huntington's disease and their loved ones. However, it's likely that any changes will not be introduced until 2026. The government's consultation (which runs until 30 June 2025) is the first step. They will then analyse the results. It’s possible their plans may change because of the feedback they get on their proposals, which is why we want to make sure that people making these decisions know all about the experiences of people with Huntington’s disease.
Some of the proposals will need legislation to become law, meaning MPs have to debate them in parliament, which could lead to them being altered. You may wish to contact your constituency’s Member of Parliament to let them know your views.
How else can I get involved?
The government’s consultation closes on 30 June 2025. If you would like to respond, there are options to complete the online form, or send an email or letter to the Department for Work and Pensions.