Researchers at the University of British Columbia invite you to participate in an online survey that aims to estimate the demand for predictive testing among the Huntington's disease community and how this might be affected by future clinical trial results. The goal of the survey is to help our healthcare system, healthcare providers, clinicians, genetic counsellors, and others involved better prepare for a potential surge in predictive testing demand and to in turn improve the quality of care given to patients and families affected by Huntington's disease.
The survey is open to individuals 18 or older who are already affected by Huntington's disease, individuals at risk for developing Huntington's disease, and individuals related to someone affected by Huntington's disease (spouse/partner or family member).