Helping people with Huntington's access good treatment, care and support
We have been working with the Neurological Alliance on helping to develop a new optimal clinical care pathway for adults with movement disorders. The pathway sets out what good treatment, care and support look like and will support the improvement of services and enable the commissioning of quality services, locally and nationally.
Specialist health professionals and patient organisations following consultation with a wide range of stakeholders, including people with lived experience developed the pathway.
Cath Stanley, Chief Executive of Huntington's Disease Association said:
It's encouraging to see the publications of guidelines that will help improve the access to and quality of care for people affected by Huntington's disease. We were pleased to be able to contribute to these guidelines, advocating for people with Huntington's disease.
This is part of a suite of optimal neuroscience clinical pathways that have been developed by the neurological community, with the support of NHS England and the National Neurosciences Advisory Group (NNAG). Information about the pathways is on the National Neurosciences Advisory Group website.