Help get the care coordination people affected by Huntington's disease need and invite your MP now. Please send this message to your MP:
Huntington’s Disease Association Parliamentary Reception
Wednesday 19 November 2025, 12noon-2pm
Jubilee Room, Palace of Westminster
Hosted by Monica Harding MP
I am asking you to represent me at the Huntington’s Disease Association Parliamentary Reception on Wednesday 19 November 2025, from 12noon to 2.00pm in the Jubilee Room in the Palace of Westminster.
You will have the opportunity to sign up to be a Huntington’s Disease Champion, with the Huntington’s Disease Association providing you with a photo and other materials to help ensure your advocacy is highlighted locally, as well as a draft letter to your local NHS commissioner.
At the event you will be able to find out more about the importance of increasing support for people with Huntington’s disease. Symptoms include:
- Thinking (difficulties with memory and cognition such as planning)
- Movement (movements may happen that you do not expect, while doing what you do want to do becomes more difficult)
- Behaviour (changes in mood and personality).
A key issue which the Huntington’s Disease Association are highlighting is the importance of care coordination for people affected by Huntington’s disease to have a single point of contact who understands their needs and can help them access services and support.
Earlier this year, the Huntington’s Disease Association welcomed draft guidelines from NICE (the National Institute for Health and Care Excellence) which recommended for there to be a single point of contact for people with chronic neurological disorders.
If you have any questions, please email: darren.rutland@hda.org.uk
I hope you will be able to attend this important event and I look forward to hearing from you.
Remember to always include your own name and address when you write to your MP so that they will know you live in their constituency.