The aim of this study is to explore the experiences of people living with a neurodegenerative condition, unpaid carers of the Social Care Needs Assessments process, and subsequent funding decisions about social care and support services.
Inequalities in Social Care Needs Assessments in Neurodegenerative Conditions
University of Liverpool
We want to find out whether the process was easy or difficult, whether people who went through the needs assessments received all the support they required, and what type of support people with a neurodegenerative condition and unpaid carers may be lacking.
This study will inform a larger research proposal.
About the study:
There are two parts to this study: interviews and survey completion. The interviews will be on the telephone or via Microsoft Teams. They will last approximately 45 minutes and will be audio-recorded. This is so that the researcher can listen back afterwards and analyse the interview. As part of this interview, participants will be asked about their experiences of going through the Social Care Needs Assessment.
The survey, which is just for unpaid carers, can be completed remotely (online or telephone) and will ask about their experiences of social care and carers needs assessments, and the outcomes of having received a needs assessment in terms of accessing care and support. This should last a maximum of 15 minutes.
Who can take part:
All participants need to be:
- Aged 16+
- Have received or provided care for a person in receipt of a SCNA (Social Care Needs Assessment) or having received a CNA (Care Needs Assessment) in the last two years
For interviews:
- People with a neurodegenerative condition (including Parkinson’s Disease, dementia, Multiple Sclerosis, Huntington’s Disease, Motor Neuron Disease)
- Unpaid carers of people with a neurodegenerative condition
For surveys:
- Unpaid carers of people with a neurodegenerative condition (as above)
How to get involved:
Unpaid carers can participate by filling in this survey:
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