A year in review of the charity, research, plus inspirational speakers from the wider Huntington's community.
After having the plans in place and arrangements made for our first in-person AGM since the pandemic, we were disappointed to have been let down by the venue meaning that we had to move the event online at the last minute. On a positive note, we have all the presentations recorded that we can share with those who did not make the event or those who wish to revisit a particular presentation.
Plans for the future
Chief Executive of the Huntington's Disease Association, Cath Stanley shares updates from the past year and our plans for the future. This talk also includes an update from Trustee, Cathy Lyon about changes in care that she want to implement for those currently living with Huntington's disease.
Dr Akshay Nair
Mental Health and Huntington's disease
Dr Akshay Nair is a Consultant Neuropsychiatrist at St. George's Hospital. He focussed this presentation around mental health.
Living with Huntington's disease, a personal perspective: 'The Hidden Destroyer'
Charlotte is a passionate Huntington's disease advocate and is a carer for a family member with Huntington's disease. Charlotte shares her journey with Huntington's throughout her life, speaking on being a carer, advocacy, anticipatory grief, loss and living with the phenomenon of knowing she will one day develop symptoms.
Professor Ed Wild
Huntington's disease research update
Professor Ed Wild is well known within the Huntington's community for his outstanding experience in neurology, his dedication to research and for his well known channel, HDBuzz which provides the community with accessible and understandable Huntington's disease and research news.
Sarah Gunn is a Clinical Psychologist and Researcher. In this talk she discusses psychological strategies such as Acceptance and Commitment Therapy for those affected by Huntington's disease.
Thank you to everyone who attended.
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