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Gloucestershire Integrated Care Board (ICB) are currently scoping the Huntington’s disease pathway in the county. As such, they have created a project group to bring together those with expertise and knowledge of Huntington’s disease. The group will gather existing data and information to facilitate improvements in how they support people with Huntington's disease in the county.
The group currently consist of commissioners (from health and social care), clinicians and staff from the Huntington’s Disease Association.
Patient and Public Involvement (PPI) plays a vital role in ensuring that healthcare services are developed to meet the needs of users. They work collaboratively with people affected by Huntington’s disease which is critical in ensuring that the working group effectively supports the development and delivery of high-quality and inclusive services.
If you are interested in this opportunity to get involved and would like to know more, please contact James Mitchell, Health and Social Commissioning Manager at NHS Gloucestershire or Ruth Sands, Head of Advisory Service at Huntington's Disease Association. The deadline is 27 January.
No, this is a voluntary role. Out-of-pocket expenses will be paid, and where meetings are
held face to face light refreshments will be provided.
You can contact either James Mitchel - Health and Social Commissioning Manager at NHS Gloucestershire or Ruth Sands from the Huntington’s Disease Association.
If you have any accessibility needs (for example with transport or needing information in large print) please let us know.
Please note by registering your interest to be part of the group your data will be held by the Huntington’s Disease Association in line with the privacy policy and by NHS Gloucestershire. Your data will only be used to support the work of this Project Group and not shared with others.
Your data will be disposed of at the end of the project in line with Information Governance.