My Neuro Survey
Share your experiences and help improve services: fill out #MyNeuroSurvey
Helpline:
Irritability in Huntington's disease
Have you noticed feelings of irritability or frustration, or have other people said they have noticed this about you? If that sounds like you, we’d love to hear your story.
The Univercity of Leicester want to speak to people affected by Huntington's disease to hear about their experience of irritability and frustration. The aim is to help them better understand how irritability present and how people make sense of it.
What does it involve?
An interview lasting about an hour to tell us about your experiences of irritability. Your insights could really make a difference.
You will be paid £20 for attending an interview, which can be done over: Microsoft Teams, phone, in person or you can reply to our questions by email.
Who can take part?
We’re looking for people with a positive genetic test for Huntington’s disease with or without symptoms, aged 18 or over, who either:
How to get involved
Caring for someone with Huntington's disease
We want to look at how people think and feel, how they respond to their thoughts and feelings, and what they do to cope when caring for someone living with Huntington’s disease.
What does it involve?
Who can take part?
You can get involved if you meet the following criteria:
How to get involved
Loneliness in Neurodegenerative disease
Loneliness and social isolation are related to poor mental and physical health. This project aims to investigate how individuals with neurogenerative disease are affected by loneliness and how it relates to social functioning. Some neurodegenerative diseases are associated with an early change in social functioning, potentially increasing social isolation. Individuals with a disability are disproportionally affected by loneliness and social isolation.
What does it involve?
Online questionnaires about:
You can participate from anywhere, using a computer or any type of handheld device. It will take approximately 20 minutes.
Who can take part?
How to get involved