This week we are sharing stories of what being a carer for someone with Huntington's disease means.
Caring for someone with Huntington’s disease is a unique experience. The right support can make a big difference and we’re here to help. Many carers have found it can help them to feel less isolated, and to get advice and support, by connecting with others in a similar situation, either in person or online. We have a website page dedicated to helping you as a carer.
Other forms of support
Branch and Support Groups
These can be a great help in meeting with other carers.
Messageboard
We have a message board where you can chat with other people in a similar situation. This is a safe space for you to share your views.
Helpline
Our specialist advisers will help anyone affected by Huntignotns including carers, you can contact your area's Specialist Adviser or call 0151 331 5444.
Monthly carer support group
We hold monthly online carer support group meetings.
Online
Follow us on Facebook, Twitter, Instagram, TikTok and LinkedIn.
Stories from some inspirational carers
Working as a carer with a Huntington's family - Ruth's story
Lover overrules it all - A young carers perspective
Talk about your journey - A caring wife's perspective
