Getting help

If you or someone you care about is affected by Huntington’s disease, we know it can be tough. We’ve gathered information to help you understand the disease and the advice and support that may be available to help you live better with Huntington’s.

In this video below you can see the ways in which the Huntington's Disease Association can help you and your family. From the perspective of one of our Specialist Huntington's Disease Advisers, you see how Huntington's can affect a whole family and what methods our SHDA's use to help and support families. This video helps you learn about outside bodies who can also offer information, support and advice.


Find out more

If you're at risk

If you're showing symptoms

If you're a carer

If you're an older carer

If you have Juvenile Huntington's

For children and young people

Specialist Huntington’s Disease Advisory service

Branches and support groups

Information resources

COVID-19 information and advice hub