For some fundraising events, you will need to have public liability insurance. Many venues already have this, so we suggest you check with them first. The Huntington’s Disease Association cannot accept liability for fundraising events that aren’t organised by us.
Got a question about fundraising for the Huntington’s Disease Association?
When you register your fundraiser you will receive our fundraising guide which contains lots of information and advice on how to make your event safe and legal. Below we have put together some frequently asked questions that will help your fundraiser run as smoothly as possible
Frequently asked questions
Do I need insurance?
Do I need a licence to hold a street collection?
It is illegal in the UK to hold a street collection without obtaining a street collection licence from your local authority (council). To find out about street collections in your area, contact your local council or type in ‘street collection licence’ into the search facility on your local authority website.
To collect money on private property, such as a supermarket or pub, you must get the permission of the owner or manager first. It may help if you are wearing a Huntington's Disease Association t-shirt and have an official collection tin, which we can provide. Other items such as Huntington's Disease Association leaflets, balloons and stickers will also be useful to have with you to hand out to people as they donate. You can order your fundraising materials here.
Can I hold a raffle or lottery?
There are three types of raffle: small, private and public. For small raffles at a one-off event where the raffle is not the main focus of the event, you do not need a licence. For a private raffle, such as one you may hold through your workplace or club, you do not need a licence. A public raffle, which is a raffle open to a wide audience over a long period of time, will need to be registered with your local authority (council). For more information and to ensure you stick to the law telephone 0121 230 6720 or visit their website.
Can I sell alcohol at my event?
You are not allowed to sell alcohol at an event unless the premises have a licence. You will normally need a premises licence in order to hold a raffle with alcohol as prizes too. We recommend that you check with the Gambling Commission before your event.
Can I take photos at my event?
Yes, but always seek permission from people if you are going to take their photograph, particularly if you plan to publicise this in any way. If you are taking photographs of children, make sure you have their parent or guardian’s permission first.
We get lots of amazing photographs sent to us that we like to share and our supporters like us to share on social media or on our website. In order for us to do this we, as a charity, require signed photo consent* from anyone in the picture (this can also be done by a parent/guardian or next of kin if appropriate). There are two ways in which you can do this.
*Please note that this data is only used for the sole purpose of photo permission.
Digital photo consent forms
When you send us the photograph you can send the email addresses of everyone in the picture. We can send each person a digital consent form which you open on your phone, fill out a few details and sign on your screen. This gets sent directly back to us and is filed securely.
Print off photo content forms
You can print off our photo consent form - in black and white is fine.
- You will need to print one copy of the second page - this has all the information about consent and how we may use your image. Everyone signing will need to read this first.
- You can then print as many copies as you need of the form.
- You return these to us via post or email to comms@hda.org.uk
Can you help me promote my fundraising?
We get lots of requests to promote fundraising activities from our supporters and we are happy to help out whenever we can.
Social media
We can promote your activity on our social media channels. To do so we need a few things from you:
- A good quality photograph preferably in a #TeamHDA t-shirt or one of our running or cycling tops.
- A quote about your fundraiser, why you are doing it, how you are feeling about it or your relationship to our charity.
- The link to your fundraising page.
- Please ensure that you are able to get photo consent from anyone else in the photo (if applicable). If someone else is in it, please include their email address in your email to us.
- Please email these to social@hda.org.uk
Social media tagging
- Instagram - Make sure you use the hashtag #TeamHDA and tag us in your posts and stories. We can reshare stories to our story but please be aware that any stories we are tagged in over the weekend may not be viewable by Monday when we check our social accounts.
- Facebook - We are unable to see tagged photos on Facebook if you profile is private but you are welcome to send them to us via messenger
Photo consent
If you want us to share photographs we will need permission from everyone in the photo that they are happy for their image to be used in this way. You can download our photo consent form and ask them to complete it and then return the form to us with the photo.
Digital photo consent forms
When you send us the photograph you can send the email addresses of everyone in the picture. We can send each person a digital consent form which you open on your phone, fill out a few details and sign on your screen. This gets sent directly back to us and is filed securely.
Print off photo content forms
You can print off our photo consent form - in black and white is fine.
- You will need to print one copy of the second page - this has all the information about consent and how we may use your image. Everyone signing will need to read this first.
- You can then print as many copies as you need of the form.
- You return these to us via post or email to comms@hda.org.uk
What is Gift Aid?
Gift Aid is a scheme where charities can claim back tax you have already paid on your donation.
Please ensure your supporters and donors include their full name, home address and postcode on your sponsorship form or tick the gift aid box on JustGiving or Virgin Money Giving in order for us to claim an extra 25p for every £1 raised. Please note that work addresses will not be accepted.
We will not to pass any personal details on to third parties. If you have sponsor forms please return them to us after your event so we can claim the gift aid; if you have set up online donation forms such as JustGiving or Virgin Money Giving you don’t need to do anything further.
How do I pay money in?
Thank you for raising funds for our work.
You can send funds to us in the following ways:
- Credit or debit card: you can make a payment over the phone by calling 0151 331 5445.
- Bank transfer: please contact our fundraising team for our bank details if you would like to make a payment by bank transfer.
- Cheque: Make your cheque payable to the Huntington’s Disease Association.
Huntington's Disease Association
Liverpool Science Park, IC1
131 Mount Pleasant,
Liverpool L3 5TF
Please do not send cash in the post.
Our promise to you
Below you can see our fundraising policies that lay out how fundraising works with the Huntington's Disease Association, what we promise you as our fundraisers and what procedure to take if you have a fundraising complaint.
For any further information on our fundraising policies please contact fundraising@hda.org.uk or call 0151 331 5444.
