A free event for young people aged 8–17 affected by Huntington’s disease, run by the Huntington’s Disease Association Youth Engagement Service (HDYES) in Birmingham.

HDYES provides specialist, youth-focused support for children and young people from families affected by Huntington’s disease, working alongside healthcare professionals, families, and schools across the UK.

All HDYES events are delivered by trained staff and follow the Huntington’s Disease Association’s safeguarding and wellbeing policies. Activities are designed to be inclusive, age-appropriate, and supportive of young people.

Find out more

Booking information

For more information, or to book a place, please fill out the booking form and send to nadia.laffey@hda.org.uk

Download the booking form

Or you can fill out a digital version of the form.

Digital form

Venue Address

Sealife Centre

The Water's Edge

Birmingham

B1 2HL

It was really fun and I loved meeting people who understand the same situation and are similar ages to me because I have never met anyone else with Huntington's disease in their family.

Meet your hosts

Ian Wilkinson - Youth Worker

Ian is a Youth Worker with the Huntington’s Disease Youth Engagement Service (HDYES). He has extensive experience supporting children and young people affected by Huntington’s disease, delivering safe, inclusive activities and providing emotional and practical support to families.

Nadia Laffey - Youth Engagement Project Officer

Nadia is a Project Officer with the Huntington’s Disease Youth Engagement Service (HDYES), supporting the delivery of youth programmes and events for families affected by Huntington’s disease.